Saturday, November 15, 2008

Hello again & Part 2

I feel like I've fallen off my duff as far as blogging goes and it's completely true! :) Oh well, sorry to leave anyone/everyone hanging on the diagnosis of our oldest.

Here's the end of part 1, we were in the ER:
"Then the doctor came and talked to me, what I thought was possibly an allergic reaction to the antibiotic was something much more serious.

To be continued . . ."

He said that her blood sugar was over 530 (I can't remember the exact number) and that she has juvenile type 1 diabetes. He said that she would be transferred by ambulance (of course!) to the nearest children's hospital. I just kind of let my chin drop, mouth hang open, and it wasn't long until the tears started to fall.

She looked so sick (well kinda anyway), so thin, so pale. I had pulled her hair up and wrapped a pony tail holder over and pulled the hair through so it would be out of the way in case she threw up. She had on her pink pajamas. She looked very thin and like a ballerina. She should've been performing on stage (though my kids have never taken ballet is beside the point) not lying in a hospital bed about to go on an ambulance ride!

Next I had to call my husband and tell him. He was asleep when I called, I felt bad for waking him. I really didn't think he'd even remember what I said, or that he understood the seriousness but he seemed to.

Some of the nurses came in, checking on us before their shifts ended or to say some kind words (one had a niece who was diagnosed not long ago), also a hug and shoulder to cry on. I truly appreciated their kindness.

We waited (and waited) for the ambulance, then it was time. The ambulance guys (2 men) were kind but also funny. It was what I needed. They helped us get settled at the children's hospital. Then the hurry up and long waits started, fast blurs of activity then long stretches of quiet, lots of guilt and crying on my part. (just keeping it real!)

The last few months of vague illness and sickness would soon make sense. If you keep track of such things, her hA1c was 12 (I just had mine checked and it was 5.4, we're starting to aim for her to be less than 7).

Later, I searched for mommy blog posts but found almost none about this topic, maybe I missed them for some reason. I want others to know that there is someone else out there, though our journey is not the same, our child's treatment/bodies/ages/diagnosis story is not the same, I'm also living this scary nightmare BUT thankful that God is in control and that my child is still here! Type 1 juvenile diabetes is manageable, livable, and one day maybe we'll look back and be thankful. Here's one college student I've found that is thankful: Mollie writes at a blog about diabetes.

Part 3 coming soon (more about our hospital stay, ugh!) :)

6 comments:

KCShipe said...

I was with my mom when my little brother was diagnosed with diabetes a couple years ago. My dad was out of town and we thought my little brother had the flu cause he was acting lethargic. My mom and I took him to the emergency room expecting them to give him some medicine and send us home. We were just as shocked as you were to hear the diabetes diagnosis. My brother is eight now and doing great! He has never had to be hospitalized after he was diagnosed and it has helped him eat healthier and learn more about health and taking control of his condition. Don't worry - God has a plan even for this. And there are a lot of people out there dealing with diabetes - apparently they just don't like blogging :)

Tizzler said...

Hello,

I know this is a little off topic, but I noticed on another blog you mentioned you use a 9x9 airbake brownie pan. Do you have any idea where I might get such a pan? My dad really loves brownies and really wants this size pan for Christmas.

Thanks!

Andrea said...

I read your question on Money Saving Mom about the Walgreens $5RR on $25. I was able to use coupons and a $6RR from last time (off the reach) and I still got my $5RR to print. The $25 total was before coupons - everything I bought was on sale, so I spent $4 and got another $5RR.

NeedANap2 said...

Tizzler,

Sorry to take so long to answer your question. I purchased that pan about 15 years ago at Wal-Mart. I wouldn't expect to find one today but it is a good place to look. Bed, Bath, & Beyond advertised (around Thanksgiving) an Air Bake 3-pan set but I think it was all cookie sheets. There does seem to be a 9x13 cake pan which would probably be good for brownies. I would look for that. I did a google search on Air Bake pans and came up with several sites you could order from. There is a pan I've seen advertised before, the edge only pan (I think it looks great for lasagna) that might work for your dad if he likes the edges. HTH! :)
(Thanks for visiting and commenting!)

Jessica said...

Hey ~ We have a good friend who's 30 years old now. He handled (and still handles) his diabetes well. His blood sugar was over a 1000 when he went in as a child. The doctors told him that the only reason he was alive with a blood sugar like that is because he was drinking so much water. His mom talks about her guilt, too, about not noticing the symptoms. But you're a mom and not a doctor. Kids get sick all the time and you can't possibly take them in for everything. Just glad you caught it in time and now the journey begins. We will be in prayer for your family and you're little girl.

Amy said...

Hi! I followed your comment on Like Merchant Ships here because my daughter was also diagnosed with Type I in September. If you'd like to chat, stop by Tiny Blessings and say hello!